Friday, May 22, 2009
Not Such A Good Night
We talked to the night nurse and she said Lucas had trouble with the CPAP all night so the doctor has ordered tests. It could be the infection is back stronger or something else. Also he did not digest his food last night so I guess it will be a rough spot for Lucas again. Hopefully it is minor and controllable. He may need to go back on the ventilator if it becomes too difficult to breath again.
Thursday, May 21, 2009
A Day with Big Brother Brayden
We got a late start to the hospital due to stuff at home, but it all turned out good. Brayden was allowed to spend a little more time with Lucas. Also Josh got a call from Dr R and Lucas's 2nd brain scan was done today. The results indicate a very slight change in Lucas's favor. He is starting to break down the blood clot. We need to continue to pray that he is able to absorb it all without blocking the circulation holes for his spinal fluid. This is all up to Lucas so we have to patient and wait until next week's follow-up ultrasound on Thursday.
Mommy got to give Lucas his 1st big bath and he enjoyed the whole experience. He kept his eyes open throughout the big event. Afterwards, Brayden arrived with daddy and watched Lucas get fed. He is up to about a teaspoon now and he looks like he is finally gaining weight.
Wednesday, May 20, 2009
Lucas Continues to Thrive




The kids had a great day with the baby and big brother Brayden was even allowed in for 5 minutes to see his little brother. Brayden was quiet and said "look he is sucking on his fingers." Overall Brayden thought it was pretty cool to finally meet his little brother. The night update on Lucas continues to be positive despite yesterday's news. Daddy had a great time holding Lucas. Tomorrow will be Amber's turn again. The rules are no clothing, only skin to skin contact with Lucas. By the looks of the pictures daddy didn't mind. Oh Lucas weighed in 2oz heavier tonight, he is now up to 2.4 oz and ate all his dinner tonight without spitting any of it back. He is taking now 3cc's or about a 1/2 tsp. per feeding every 3hrs.
Day 11 I Got A Binky (Pacifier)
Today mommy and daddy came in and daddy got to hold me for the first time (pictures to follow). I loved daddy holding me and when I squirmed daddy rubbed my back (which they said not to), but I loved it! See they don't know everything. I got tired of hearing the kid next to me screamin so daddy had to put me back in bed just after an hour of being held. Tomorrow the neurologist will take another picture and we will find out by Friday what is going on. Also I guess I get all the tests again. Good news they are feeding me more and I am starting to gain weight. Mommy says if I am a good boy the nurse will let me get a bath from mommy instead of the nurse. Yea!
Tuesday, May 19, 2009
What a Day
The word from the doctors are Lucas's ultrasound indicates a grade 4 brain bleed; not good. The good news is he is showing no symptoms of this type of bleed. It is in fact a puzzle to the doctors and they are shocked at the results. Of course this freaked Amber, Josh, and grandma out a bit. Doctor R said they have no way of determining when or why this happened, but they are prepared to act if necessary. There are some serious complications possible with this diagnosis. However, Lucas continues to surprise us each day. Today he decided to remove his own ventilation tube, so the doctors placed him back on the CPAP and so far he is doing well with it. Time will tell! Good news he was held by mommy for over an hour today.....his first time out of the box. He loved it so well he fell asleep and forgot to breath, mommy had to gently stimulate him to wake up a bit and breath. I have some great pictures of him being held, taken by daddy. Please continue to pray for Lucas's remarkable progress and that his little brain will recover from the bleed without complications. Thank you to everyone that is supporting Lucas, Mommy, and daddy.
A Call from the Doctor Day 9
Well Amber and I took the morning to just rest and wouldn't you know it the doctor calls. They took Lucas off the vent again and he is on the CPAP and doing well. Dr R. also said she had the brain ultrasound done and wants to discuss the results in person, we both held our breaths. We don't know what it means, but we are enroute to the hospital. Pray it all goes well! I will update everyone asap. Grandma Jojo
Subscribe to:
Posts (Atom)
